Guess it's time for an update . . .

I know it's been a while since I posted, but to be completely honest, I'm in such a depressed state these days, I've tried to stay away from posting anywhere. I know things will get better. I know we'll get into a routine with Jilli & I know we will come to terms with her illness. But that time just hasn't arrived as yet.

I HATE having to give her daily injections. I HATE having to watch every morsel of food that goes into her sweet little mouth. I HATE having to say "no" to her. I HATE the anxiety attacks she has because of all the changes going on in her body. For the love of Pete, she's only 17 months old!!! I HATE that Tyler wishes it was him instead of her. I HATE that I catch him crying while he's looking at her. I HATE this illness & I pray for a cure . . .